Patricia Javier celebrates birthday with lupus patients

Updated as of 5/23/2017 10:08 AM
by: Joan Leary

For her birthday this year, actress Patricia Javier didn’t have a grand celebration. Instead, she visited lupus patients with Ormoc representative Lucy Torres-Gomez and Diwa Rep. Emmeline Aglipay-Villar who is a lupus patient and the president of the Hope For Lupus (HFL) Foundation.

“It started when I got invited to join the surprise birthday party for Cong. Em last May 10, which also happens to be World Lupus Day,” Patricia told the Philippine Daily Inquirer.

“It’s the first time that I’ve heard of lupus … I realized that people should be made aware of the illness. That’s when I decided to spend my birthday by participating in a worthwhile cause such as this,” she added.

Lucy, who is also a friend of Emmeline, said she didn’t hesitate to open the exhibit on lupus awareness at the Glorietta mall in Makati.

“As I learned more about lupus, I realized that it’s not like a death sentence, that people can live normal lives if they get the proper treatment and care,” she said.

“In a personal and professional capacity, I pledged support to Em, because looking at the symptoms and now, lupus patients can be anyone, and we just don’t know they have it,” she added.

Young moms of the new millennium

By Joyce Reyes-Aguila

 

For all the grief and bad press that so-called Millennials (or people born anywhere from the ’80s to early 2000s) get, Millennial women are more likely to “interrupt their career for family,” according to a Harvard Business School alumni survey shared by New York Times columnist Claire Cain Miller in “More Than Their Mothers, Young Women Plan Career Pauses. ” In it, she wrote that “37 percent of Millennial women and 42 percent of those already married planned to interrupt their career for family…compared with 28 percent of Generation X women and 17 percent of baby boomers.”

These days, young mothers who have demanding careers will not think twice about scaling back work for the sake of their families. Millennial moms are finding ways to integrate their home life with their professional life, as Panorama learns from three busy mothers who have careers in the fields of public service, entertainment, and television/movie production.

So, how do Millennial moms get through the expectations and demands of all their roles?

Rep. Em Aglipay-Villar and daughter Emma Therese

Rep. Em Aglipay-Villar and daughter Emma Therese

Rep. Emmeline Aglipay-Villar

DIWA Party List Representative

A demanding legislative role used to take precedence for Democratic Independent Workers’ Association (DIWA) Party-list representative Emmeline “Em” Aglipay-Villar.  She would attend every single affair she was invited to, travel around the country to visit projects, conduct activities for her organization, and speak with its members even during weekends. “I am a workaholic, and work has been a priority in my life,” she admits. “But I always knew that once I have a family of my own, it would have to be the priority.”

So when she and her husband, Department of Public Works and Highways (DPWH) Secretary Mark Villar, welcomed daughter Emma Therese in September 2015, the youngster became the center of their lives. “Mark and I are hands-on parents,” the lawyer and member of the University of the Philippines Order of the Purple Feather Honors Society shared. “I am a co-sleeping, breast-feeding, cloth-diapering kind of mom. I try to personally prepare Emma’s food (and) educational activities for her at home, bring her to play school, read her books…” Free time during the day is also spent with their child.

Rep. Em Aglipay-Villar, a lupus sufferer and advocate, and Public Works and Highways Secretary Mark Villar with their firstborn and pride and joy, Emma Therese

Rep. Em Aglipay-Villar, a lupus sufferer and advocate, and Public Works and Highways Secretary Mark Villar with their firstborn and pride and joy, Emma Therese

The first-time parents are learning to integrate family time with their work that, at times, requires attention even on weekends. Often, Emma joins her parents on work trips and enjoys the sights via an extra day. When the congresswoman is scheduled to visit DIWA bailiwick province Bohol, for example, the cabinet secretary would schedule infrastructure inspections in the area to get some work done at the same time.

“Emma and I have not slept apart since she was born,” the 10 Outstanding Young Men (TOYM) of 2012 for Public Service awardee said. “If I have to stay overnight somewhere, I would bring her with me (and) find a suitable place for her to stay.”

After each session day at the Lower House, Em gets home when their baby is about to sleep or is already asleep. “If she is awake, we shower together and do our nightly rituals like reading books and praying,” she says. “Mark also usually arrives when Emma is asleep already. In the middle of the night, he helps me change diapers.” To make up for his busy schedule, the secretary makes sure he spends the weekend with his family. And if work entails him to be away, Emma sees a lot of her dad through numerous video calls a day.

“These are just minor adjustments,” the legislator said. At present, she juggles her time with her congressional duties for DIWA and Las Piñas—Mark’s elective district where she is the designated caretaker, and her responsibilities when she was the chair of the Committee on Women and Gender Equality. Em is also currently busy with her Masters in Law studies, and advocacies such as the Hope for Lupus Foundation. Being a mom, she said, has not allowed her to work out daily or go to the salon regularly to get a manicure-pedicure. “Now, I am only able to cut my hair when people already bug me to cut it.”

Last Christmas at the Villar home

Last Christmas at the Villar home

“I do not feel bad about this. I choose to do all these things. I just face the challenges with a lot of positive vibes—always facing each day with a strong spirit and passion for my work, all the love in the world for my family, and a grateful heart. I’m just brimming with excitement for all these. Having love for what you do is the best way to get through the challenges, since you are able to bear the hardships that go with achieving your goals, whether personal or professional,” she added.

Recently, stress took its toll on Em, and she experienced a lupus flare. She had first manifested the symptoms of the autoimmune disease in 2007. She has had to cut down on her work, adding that she wants “to live long and be healthy for Emma and for Mark.” Her Hope for Lupus Foundation was founded to help patients who cannot afford treatment, and effectively diagnose those suspected to have the malaise. The congresswoman initially had second thoughts about establishing the foundation, scared that her illness would make people judge her unfit to be a public servant. But when she experienced complications in 2015 that almost made her lose her battle to the illness, Em decided to “lose no time in doing what (she had) always wanted to do.” She established the foundation, is writing a book, applied into her dream school, and continues to do everything possible to be a good wife and mom. For her, family always comes first. Villar believes in setting priorities in order, and training people so one can delegate tasks at work instead of “delegating your task as a mother to someone else.”

“Though I have always dreamed of becoming a mother, I only understood what it truly meant when I became one,” says Em. “I am still able to reach my general career goals while at the same time being physically present for Emma. I want to be the best mother that I can be and, if I should be forced to choose between my career and my child/children, I would always choose the latter. Nothing could be more important than them.”

The healing power of love

Since he will be on official trip to China this weekend, Public Works Sec. Mark Villar surprised his wife, DIWA Party List Rep. Emmeline “Em” Aglipay-Villar with a Mother’s Day big lunch at Annabel’s restaurant last Wednesday graced by media guys and what the couple called The Lupus Warriors composed of lupus patients like Em. “We will celebrate Mother’s Day as soon as I come back,” said Mark. “It will be a big family day.” According to a medical book, lupus is an autoimmune disease that causes swelling (inflammation) and a wide variety of symptoms. It affects each individually uniquely. Some people have only a few mild symptoms and others have many, more severe symptoms, among them: Fatigue, recurrent low-grade fever, rashes, itchy lesions in some areas of the body, discoloration in the fingers and toes, chest pains and shortness of breath, swollen painful joints, gastro intestinal problems, etc. “I have all those,” Em again reminded those present. “Lupus can be hard to diagnose because it hides behind various symptoms. Once you have it, you have it for life. All you can do is take medications to manage it.” As Funfare previously reported, Em was single when she was in her early 20s when diagnosed with lupus. She underwent chemotherapy. “Luckily,” said Em, “I didn’t have to undergo dialysis.” Entertainment ( Article MRec ), pagematch: 1, sectionmatch: 1 To hide the rashes on her face, she had to wear thick makeup. She said that she even hesitated to get married…

 

read more: https://www.aseanbreakingnews.com/2017/05/the-healing-power-of-love/

A RELEVANT SURPRISE BIRTHDAY PARTY FOR REP. VILLAR

REP. Emmeline Aglipay-Villar of Diwa Party List is a lupus survivor and she turned 35 last May 10, which was by coincidence also World Lupus Day. “Talagang malaki ang koneksyon sa’kin ng lupus,” she laughs.

She says she planned to launch her book, “Living Better with Lupus”,  in time for her birthday. “But hindi natuloy kasi nagkaproblema sa distribution, so sa June na lang. I’m also supposed to launch a project providing umbrellas kasi kalaban naming mga may lupus ang sikat ng araw dahil we’re photosensitive, hindi rin natuloy. So nabanggit ko sa husband ko, DPWH Sec. Mark Villar (the son of Sens. Manny and Cynthia Villar), that I’m so sad na walang mangyayaring kaganapan sa birthday ko. I didn’t know, he prepared pala this surprise birthday party for me.”

The secret bash was held at Annabel’s and Rep. Emmeline was really surprised to see the lupus patients she’s been helping to be there to greet her in person. Also present were Mr. Dioceldo Sy and his basketball players for Blackwater team, actress Patricia Javier, selected member of the press led by Manay Lolit Solis. Sec. Mark says he didn’t like to see his wife so sad so he quickly organized the surprise birthday bash for her. “I don’t usually organize surprise parties like this but I did it for my wife who I love so much,” he says.

Some lupus survivors shared their experience and struggle with the disease. Rep. Emmeline herself was diagnosed with lupus when she was 25 years old when she was a new lawyer. “I suddenly had rashes, blisters on my face and body, very painful joint pains. Important na ma-detect agad before it gets worse and destroy other organs. Lupus is a disease where the body’s immune system attacks healthy cells and tissues. Many lupus patients die without proper diagnosis and treatment, so our Help for Lupus Foundation aims to raise awareness about the disease through education, community research programs and funding Lupus research.”

 

Original post: http://www.journal.com.ph/entertainment/showbiz/lovi-s-second-time-with-vhong

Miracle baby nina Sec. Villar at Rep. Em one year old na

Startalk ni Lolit Solis

Carbon copy ni DPWH Secretary Mark Villar

si Emma Therese, ang one and only daughter nila ng kanyang misis na si Diwa Party-List House Representative Emmeline Aglipay-Villar.

First time ko na nakita nang personal ang bagets na nagpapaligaya kina Em at Papa Mark.

Isang miracle baby si Emma Therese dahil may lupus disease ang nanay niya pero nagbuntis pa rin at nagsilang ng isang healthy baby girl.

Nagkita kami kahapon nina Papa Mark at Em sa World Lupus Day celebration na sinabayan ng surprise lunch para sa 35th birthday ni Em, ang founder ng Hope for Lupus Foundation.

Misis ni Sec. Villar, tuloy ang laban sa Lupus

By Lolit Solis

Bawal na bawal pala sa mga may sakit na Lupus ang sobrang tindi na sikat ng araw dahil makaaapekto ito sa karamdaman nila.

Nalaman ko ang impormasyon mula kay Diwa Party-List House Representative Emmeline Aglipay-Villar na isinusulong ang paggamit ng payong ng mga lupus patient.
Malawak ang kaalaman ng loving wife ni DPWH Secretary Mark Villar tungkol sa lupus dahil ganito rin ang sakit niya na natuklasan noong 2007.

Rep. Em naiyaksa sorpresa ni Sec. Mark

Kahapon ang 35th birthday ni Em at nag-celebrate siya sa piling ng Lupus Warriors na tinutulungan ng foundation na itinatag niya, ang Hope for Lupus.

Eksakto sa kaarawan ni Em ang World Lupus Day kaya mala­king sorpresa sa kanya ang party na regalo ni Secretary Villar sa isang restaurant sa Quezon City.

Clueless na clueless si Em sa surprise birthday celebration dahil meeting ang pupuntahan nila ang sinabi sa kanya ni Papa Mark.

PSN ( Article MRec ), pagematch: 1, sectionmatch:
Walang-wala sa isip ni Em na nagtipun-tipon sa restaurant ang kanyang mga kaibigan, ang Lupus Warriors at si Emma Therese, ang one and only daughter nila ni Papa Mark.

Tiniyak ni Papa Mark na magiging unforgettable para sa misis niya ang surprise birthday party na maaga na nagsimula dahil bibiyahe pa sa ibang bansa ang DPWH Sec., kasama si President Rodrigo Duterte.

Anim na araw na mawawala sa Pilipinas si Papa Mark dahil isinama siya ni Papa Rody sa pagbisita nito sa Cambodia, Hong Kong, at China.

Invited guests sa paggunita ng World Lupus Day ang former sexy stars na sina Patricia Javier at Ynez Veneracion.

Si Papa Dioceldo Sy, ang businessman na may-ari ng Everbilena at Blackwater Elite basketball team ang nag-imbita kina Patricia at Ynez na parehong may sapat na knowledge tungkol sa Lupus. Nakita ko rin sa event ang nagtatangkaran na basketball players ng Blackwater Elite.

Si Em ang founder ng Hope for Lupus Foundation na pangunahing layunin na ma-educate ang mga Pilipino tungkol sa karamdaman na kumikitil ng maraming buhay kapag hindi naagapan.

“Many people with lupus die because they were diagnosed when it was too late to do something about it, and more people die undiagnosed. If they had known the symptoms of lupus and received the proper treatment early on, their lives could have been saved, “ ang sabi ni Em.

Rep. Emmeline Aglipay-Villar Given A Surprise Birthday Party Of Husband DPWH Sec. Mark Villar On World Lupus Day

Rep. Emmeline Aglipay-Villar Given A Surprise Birthday Party Of Husband DPWH Sec. Mark Villar On World Lupus Day

 

REP. EMMELINE AGLIPAY-VILLAR of Diwa Party List is a lupus survivor and she turned 35 on May 10, which is by coincidence also World Lupus Day. “Talagang malaki ang koneksyon sa’kin ng lupus,” she laughs.

She says she planned to launch her book, “Living Better with Lupus”, on May 10 in time for her birthday. “But hindi natuloy kasi nagkaproblema sa distribution, so sa June na lang. I’m also supposed to launch a project providing umbrellas kasi kalaban naming mga may lupus ang sikat ng araw dahil we’re photosensitive, hindi rin natuloy. So nabanggit ko sa husband ko, DPWH Sec. Mark Villar (the son of Sens. Manny and Cynthia Villar), that I’m so sad na walang mangyayaring kaganapan sa birthday ko. I didn’t know, he prepared pala this surprise birthday party for me.”

The secret bash was held at Annabel’s and Rep. Emmeline was really surprised to see the lupus patients she’s been helping to be there to greet her in person. Also present were Mr. Dioceldo Sy and his basketball players for Blackwater team, actress Patricia Javier, selected member of the press led by Manay Lolit Solis. Sec. Mark says he didn’t like to see his wife so sad so he quickly organized the surprise birthday bash for her. “I don’t usually organize surprise parties like this but I did it for my wife who I love so much,” he says.

Some lupus survivors shared their experience and struggle with the disease. Rep. Emmeline herself was diagnosed with lupus when she was 25 years old when she was a new lawyer. “I suddenly had rashes, blisters on my face and body, very painful joint pains. Important na ma-detect agad before it gets worse and destroy other organs. Lupus is a disease where the body’s immune system attacks healthy cells and tissues. Many lupus patients die without proper diagnosis and treatment, so our Help for Lupus Foundation aims to raise awareness about the disease through education, community research programs and funding Lupus research.”

World Lupus Day

Repost from: http://missfiggyph.blogspot.com/2017/05/world-lupus-day.html
My Lupus flare is a monstrous burden on me. Since September 2016 up to now it penetrated my everyday life starting from the basic up to the mental and emotional states of it. Waking up in the morning thinking it is another Lupus day is basically giving me the “stress” all at once, and how ironic because stress is the most important thing that a Lupus patient must avoid.
But anyway, enough of my drama! Since it’s World Lupus Day, I figured I should be happy. Not because I get to celebrate WLD because of my Lupus, but because I now know that people are getting more aware of this illness, they’re being active of extending the awareness, and most importantly, they’re giving support and spreading love. What a happy day it really is! 🙂
I joined the HFL Warriors Group in hopes that I would find people whom I can talk and relate to when it comes to my illness, and it was indeed one of the best decisions I’ve made. Being a timid type of person, opening up myself to people I barely even know was a big big big step for me.

I was browsing my Facebook feed when a post from the group popped out, it was an invitation for the celebration of World Lupus Day and also as a surprise birthday party for the Hope for Lupus founder, Congresswoman Emmeline Aglipay-Villar, who happens to have Lupus also. Right at that moment I didn’t hesitate to join, I immediately commented my name for the list and was gladly accepted by the admin. Then came May 10, I prepped for the event and went at the said venue, it was held at Annabel’s Restaurant in Tomas Morato, Quezon City. I felt like I am a total gatecrasher when I arrived at the event, kind of nervous because it is really my first time to attend in an event like that and I am totally clueless of what’s gonna happen. But anyway, I just stayed calm and luckily the HFL volunteers where so gracious for assisting me. There was a short sharing of Lupus stories from the survivors, messages from DPWH Secretary Mark Villar for his wife Congresswoman Emmeline, messages from some of their friends, presscon, Miss Em’s Lupus story and many more. By the way, the food was good, it was buffet style so everyone got to have the taste of everything. 🙂
But most importantly, I gained a lot from this celebration. I have gotten the privilege of discovering Lupus in a much deeper sense and to a whole new level, I listened to their stories, I was fed by new knowledge from different walks of life, interacted with real Lupus warriors, and of course got to be a part of the birthday celebration of another true Lupus warrior.
Thank you Miss Emm and Happiest birthday to you! We are all thankful to you for initiating the Hope for Lupus Foundation and for continuously giving support and spreading hope for every Lupus warrior. I wish for your fast recovery and best of health. There is HOPE! 🙂

 

MILESTONE ACHIEVED! 🙂

HAPPY WORLD LUPUS DAY!!! 🙂

Couple goals: Em Aglipay is the happiest girl on World Lupus Day

this politiko is a lucky girl with Mark Villar as a husband.

DIWA Party-list Rep. Emmeline Aglipay-Villar wears many hats for various advocacies, but she saw all of these come together on her birthday last May 10, which also happens to be World Lupus Day.

The politiko was supposed to launch her book on lupus where she shares her experience of living with the disease, but printing got pushed back due to some problems. She also thought she won’t be able to celebrate her special day with her dear husband, thinking that the Public Works secretary would fly off with President Rodrigo Duterte on official business.

But Aglipay got the surprise of her life as Villar stayed and even prepared a surprise for her, as he brought together fellow lupus survivors for a get-together on Em’s birthday.

What a treat. Kilig!

 

Original Post: http://metromanila.politics.com.ph/2017/05/11/couple-goals-em-aglipay-happiest-girl-world-lupus-day/