The healing power of love

Since he will be on official trip to China this weekend, Public Works Sec. Mark Villar surprised his wife, DIWA Party List Rep. Emmeline “Em” Aglipay-Villar with a Mother’s Day big lunch at Annabel’s restaurant last Wednesday graced by media guys and what the couple called The Lupus Warriors composed of lupus patients like Em. “We will celebrate Mother’s Day as soon as I come back,” said Mark. “It will be a big family day.” According to a medical book, lupus is an autoimmune disease that causes swelling (inflammation) and a wide variety of symptoms. It affects each individually uniquely. Some people have only a few mild symptoms and others have many, more severe symptoms, among them: Fatigue, recurrent low-grade fever, rashes, itchy lesions in some areas of the body, discoloration in the fingers and toes, chest pains and shortness of breath, swollen painful joints, gastro intestinal problems, etc. “I have all those,” Em again reminded those present. “Lupus can be hard to diagnose because it hides behind various symptoms. Once you have it, you have it for life. All you can do is take medications to manage it.” As Funfare previously reported, Em was single when she was in her early 20s when diagnosed with lupus. She underwent chemotherapy. “Luckily,” said Em, “I didn’t have to undergo dialysis.” Entertainment ( Article MRec ), pagematch: 1, sectionmatch: 1 To hide the rashes on her face, she had to wear thick makeup. She said that she even hesitated to get married…

 

read more: https://www.aseanbreakingnews.com/2017/05/the-healing-power-of-love/

A RELEVANT SURPRISE BIRTHDAY PARTY FOR REP. VILLAR

REP. Emmeline Aglipay-Villar of Diwa Party List is a lupus survivor and she turned 35 last May 10, which was by coincidence also World Lupus Day. “Talagang malaki ang koneksyon sa’kin ng lupus,” she laughs.

She says she planned to launch her book, “Living Better with Lupus”, in time for her birthday. “But hindi natuloy kasi nagkaproblema sa distribution, so sa June na lang. I’m also supposed to launch a project providing umbrellas kasi kalaban naming mga may lupus ang sikat ng araw dahil we’re photosensitive, hindi rin natuloy. So nabanggit ko sa husband ko, DPWH Sec. Mark Villar (the son of Sens. Manny and Cynthia Villar), that I’m so sad na walang mangyayaring kaganapan sa birthday ko. I didn’t know, he prepared pala this surprise birthday party for me.”

The secret bash was held at Annabel’s and Rep. Emmeline was really surprised to see the lupus patients she’s been helping to be there to greet her in person. Also present were Mr. Dioceldo Sy and his basketball players for Blackwater team, actress Patricia Javier, selected member of the press led by Manay Lolit Solis. Sec. Mark says he didn’t like to see his wife so sad so he quickly organized the surprise birthday bash for her. “I don’t usually organize surprise parties like this but I did it for my wife who I love so much,” he says.

Some lupus survivors shared their experience and struggle with the disease. Rep. Emmeline herself was diagnosed with lupus when she was 25 years old when she was a new lawyer. “I suddenly had rashes, blisters on my face and body, very painful joint pains. Important na ma-detect agad before it gets worse and destroy other organs. Lupus is a disease where the body’s immune system attacks healthy cells and tissues. Many lupus patients die without proper diagnosis and treatment, so our Help for Lupus Foundation aims to raise awareness about the disease through education, community research programs and funding Lupus research.”

 

Original post: http://www.journal.com.ph/entertainment/showbiz/lovi-s-second-time-with-vhong

Misis ni Sec. Villar tuloy ang laban sa Lupus

(Pang-Masa) |

Nakaka-touch ang anak ni former Senator Manny Villar na si DPWH (Department of Public Works and Highways) Secretary Mark Villar dahil binigyan niya ng surprise birthday celebration ang asawang si Diwa Party List Representative Emmeline Aglipay-Villar kahapon sa Annabelle’s Restaurant kasabay ng pagdiriwang ng World Lupus Day.

Si Cong. Emmeline ang founder ng Hope for Lupus Foundation, Inc. na naglalayong magbigay ng inspirasyon sa mga taong may Lupus na katulad niya at magbigay ng awareness sa mga tao tungkol sa sakit na ito.

Ayon kay Sec. Villar, noong Sunday pa raw malungkot ang misis niya dahil hindi natuloy ang mga charitable projects na naka-schedule kaya nag-isip siya ng paraan para naman gumaan ang pakiramdam ng asawa.

“Nung nakita ko na malungkot na malungkot siya, pati ako nalungkot. Kaya immediately, right after that, nag-organize (ako). Kaya pasensiya na po at medyo last minute itong event na ito,” pahayag ni Sec. Villar.

Sa nasabing event ay inimbita rin ni Sec. Villar ang fellow Lupus Warriors ni Cong. Emmeline para naman sama-sama nilang gunitain ang World Lupus Day.

Ibinahagi rin ni Sec. Mark ang birthday wish niya para sa asawa.

“It’s always my wish and my prayer that ‘yung Lupus goes back into remission, sana maging normal ulit ‘yung lupus (patients). I’ve been always praying for that and I love you very much,” ang mensahe ni Sec. Villar sa asawa.

Not just for his wife, wish daw niya sa lahat ng narooong biktima ng lupus na gumaling na ang mga ito.

“And I will do my best to continue supporting this foundation,” sey pa niya.

Isa-isa ring binigyan ni Sec. Villar ng inspirational gifts ang mga Lupus warriors na naroroon so that they can continue to fight on and inspire other people.

Touched na touched naman si Cong. Emmeline sa ginawa ng asawa at hindi niya raw talaga alam na may sorpresa itong inihanda. Ang alam daw niya na pupuntahan niya ay meeting lang.

Na-diagnose ng Lupus si Rep. Emmeline noong 2007, at hanggang nga­yon ay patuloy pa rin siyang nakikipaglaban sa sakit na ito pati na rin ang kanyang Lupus warriors since wala pang gamot sa naturang karamdaman.

Miracle baby nina Sec. Villar at Rep. Em one year old na

Startalk ni Lolit Solis

Carbon copy ni DPWH Secretary Mark Villar

si Emma Therese, ang one and only daughter nila ng kanyang misis na si Diwa Party-List House Representative Emmeline Aglipay-Villar.

First time ko na nakita nang personal ang bagets na nagpapaligaya kina Em at Papa Mark.

Isang miracle baby si Emma Therese dahil may lupus disease ang nanay niya pero nagbuntis pa rin at nagsilang ng isang healthy baby girl.

Nagkita kami kahapon nina Papa Mark at Em sa World Lupus Day celebration na sinabayan ng surprise lunch para sa 35th birthday ni Em, ang founder ng Hope for Lupus Foundation.

Misis ni Sec. Villar, tuloy ang laban sa Lupus

By Lolit Solis

Bawal na bawal pala sa mga may sakit na Lupus ang sobrang tindi na sikat ng araw dahil makaaapekto ito sa karamdaman nila.

Nalaman ko ang impormasyon mula kay Diwa Party-List House Representative Emmeline Aglipay-Villar na isinusulong ang paggamit ng payong ng mga lupus patient.
Malawak ang kaalaman ng loving wife ni DPWH Secretary Mark Villar tungkol sa lupus dahil ganito rin ang sakit niya na natuklasan noong 2007.

Rep. Em naiyaksa sorpresa ni Sec. Mark

Kahapon ang 35th birthday ni Em at nag-celebrate siya sa piling ng Lupus Warriors na tinutulungan ng foundation na itinatag niya, ang Hope for Lupus.

Eksakto sa kaarawan ni Em ang World Lupus Day kaya mala­king sorpresa sa kanya ang party na regalo ni Secretary Villar sa isang restaurant sa Quezon City.

Clueless na clueless si Em sa surprise birthday celebration dahil meeting ang pupuntahan nila ang sinabi sa kanya ni Papa Mark.

PSN ( Article MRec ), pagematch: 1, sectionmatch:
Walang-wala sa isip ni Em na nagtipun-tipon sa restaurant ang kanyang mga kaibigan, ang Lupus Warriors at si Emma Therese, ang one and only daughter nila ni Papa Mark.

Tiniyak ni Papa Mark na magiging unforgettable para sa misis niya ang surprise birthday party na maaga na nagsimula dahil bibiyahe pa sa ibang bansa ang DPWH Sec., kasama si President Rodrigo Duterte.

Anim na araw na mawawala sa Pilipinas si Papa Mark dahil isinama siya ni Papa Rody sa pagbisita nito sa Cambodia, Hong Kong, at China.

Invited guests sa paggunita ng World Lupus Day ang former sexy stars na sina Patricia Javier at Ynez Veneracion.

Si Papa Dioceldo Sy, ang businessman na may-ari ng Everbilena at Blackwater Elite basketball team ang nag-imbita kina Patricia at Ynez na parehong may sapat na knowledge tungkol sa Lupus. Nakita ko rin sa event ang nagtatangkaran na basketball players ng Blackwater Elite.

Si Em ang founder ng Hope for Lupus Foundation na pangunahing layunin na ma-educate ang mga Pilipino tungkol sa karamdaman na kumikitil ng maraming buhay kapag hindi naagapan.

“Many people with lupus die because they were diagnosed when it was too late to do something about it, and more people die undiagnosed. If they had known the symptoms of lupus and received the proper treatment early on, their lives could have been saved, “ ang sabi ni Em.

Rep. Emmeline Aglipay-Villar Given A Surprise Birthday Party Of Husband DPWH Sec. Mark Villar On World Lupus Day

Rep. Emmeline Aglipay-Villar Given A Surprise Birthday Party Of Husband DPWH Sec. Mark Villar On World Lupus Day

REP. EMMELINE AGLIPAY-VILLAR of Diwa Party List is a lupus survivor and she turned 35 on May 10, which is by coincidence also World Lupus Day. “Talagang malaki ang koneksyon sa’kin ng lupus,” she laughs.

She says she planned to launch her book, “Living Better with Lupus”, on May 10 in time for her birthday. “But hindi natuloy kasi nagkaproblema sa distribution, so sa June na lang. I’m also supposed to launch a project providing umbrellas kasi kalaban naming mga may lupus ang sikat ng araw dahil we’re photosensitive, hindi rin natuloy. So nabanggit ko sa husband ko, DPWH Sec. Mark Villar (the son of Sens. Manny and Cynthia Villar), that I’m so sad na walang mangyayaring kaganapan sa birthday ko. I didn’t know, he prepared pala this surprise birthday party for me.”

The secret bash was held at Annabel’s and Rep. Emmeline was really surprised to see the lupus patients she’s been helping to be there to greet her in person. Also present were Mr. Dioceldo Sy and his basketball players for Blackwater team, actress Patricia Javier, selected member of the press led by Manay Lolit Solis. Sec. Mark says he didn’t like to see his wife so sad so he quickly organized the surprise birthday bash for her. “I don’t usually organize surprise parties like this but I did it for my wife who I love so much,” he says.

Some lupus survivors shared their experience and struggle with the disease. Rep. Emmeline herself was diagnosed with lupus when she was 25 years old when she was a new lawyer. “I suddenly had rashes, blisters on my face and body, very painful joint pains. Important na ma-detect agad before it gets worse and destroy other organs. Lupus is a disease where the body’s immune system attacks healthy cells and tissues. Many lupus patients die without proper diagnosis and treatment, so our Help for Lupus Foundation aims to raise awareness about the disease through education, community research programs and funding Lupus research.”

World Lupus Day

Repost from: http://missfiggyph.blogspot.com/2017/05/world-lupus-day.html
My Lupus flare is a monstrous burden on me. Since September 2016 up to now it penetrated my everyday life starting from the basic up to the mental and emotional states of it. Waking up in the morning thinking it is another Lupus day is basically giving me the “stress” all at once, and how ironic because stress is the most important thing that a Lupus patient must avoid.
But anyway, enough of my drama! Since it’s World Lupus Day, I figured I should be happy. Not because I get to celebrate WLD because of my Lupus, but because I now know that people are getting more aware of this illness, they’re being active of extending the awareness, and most importantly, they’re giving support and spreading love. What a happy day it really is! 🙂
I joined the HFL Warriors Group in hopes that I would find people whom I can talk and relate to when it comes to my illness, and it was indeed one of the best decisions I’ve made. Being a timid type of person, opening up myself to people I barely even know was a big big big step for me.

I was browsing my Facebook feed when a post from the group popped out, it was an invitation for the celebration of World Lupus Day and also as a surprise birthday party for the Hope for Lupus founder, Congresswoman Emmeline Aglipay-Villar, who happens to have Lupus also. Right at that moment I didn’t hesitate to join, I immediately commented my name for the list and was gladly accepted by the admin. Then came May 10, I prepped for the event and went at the said venue, it was held at Annabel’s Restaurant in Tomas Morato, Quezon City. I felt like I am a total gatecrasher when I arrived at the event, kind of nervous because it is really my first time to attend in an event like that and I am totally clueless of what’s gonna happen. But anyway, I just stayed calm and luckily the HFL volunteers where so gracious for assisting me. There was a short sharing of Lupus stories from the survivors, messages from DPWH Secretary Mark Villar for his wife Congresswoman Emmeline, messages from some of their friends, presscon, Miss Em’s Lupus story and many more. By the way, the food was good, it was buffet style so everyone got to have the taste of everything. 🙂
But most importantly, I gained a lot from this celebration. I have gotten the privilege of discovering Lupus in a much deeper sense and to a whole new level, I listened to their stories, I was fed by new knowledge from different walks of life, interacted with real Lupus warriors, and of course got to be a part of the birthday celebration of another true Lupus warrior.
Thank you Miss Emm and Happiest birthday to you! We are all thankful to you for initiating the Hope for Lupus Foundation and for continuously giving support and spreading hope for every Lupus warrior. I wish for your fast recovery and best of health. There is HOPE! 🙂

 

MILESTONE ACHIEVED! 🙂

HAPPY WORLD LUPUS DAY!!! 🙂

Couple goals: Em Aglipay is the happiest girl on World Lupus Day

this politiko is a lucky girl with Mark Villar as a husband.

DIWA Party-list Rep. Emmeline Aglipay-Villar wears many hats for various advocacies, but she saw all of these come together on her birthday last May 10, which also happens to be World Lupus Day.

The politiko was supposed to launch her book on lupus where she shares her experience of living with the disease, but printing got pushed back due to some problems. She also thought she won’t be able to celebrate her special day with her dear husband, thinking that the Public Works secretary would fly off with President Rodrigo Duterte on official business.

But Aglipay got the surprise of her life as Villar stayed and even prepared a surprise for her, as he brought together fellow lupus survivors for a get-together on Em’s birthday.

What a treat. Kilig!

 

Original Post: http://metromanila.politics.com.ph/2017/05/11/couple-goals-em-aglipay-happiest-girl-world-lupus-day/

The Congresswoman

Posted on

 

Life is stressful enough on it’s own. Imagine doing it with a high powered job and living with an autoimmune disease.

Meet the superwoman, Philippine Congresswoman Emmeline Aglipay-Villar.

In October 2007, Em was diagnosed with lupus. She started having blister-looking rashes all over her face and body, her hair started falling off, and she experienced joint pain. She also developed anemia and her back started to hurt – it turned out that her kidneys were failing and this lead to major damage to her kidneys.

Lupus is a hard disease to diagnose because the symptoms are vague. And unlike other diseases, a single lab test cannot confirm it. Some patients die because they have not been diagnosed correctly and they experience severe organ damage. Luckily, Em was diagnosed right on time, but the first 2 years were not a walk in the park.

“It was very difficult for me. I had severe joint pains in my hands,
ankles, knees, feet, shoulder blades, and hips. I could not do
much without feeling so much pain. I relied on pain medication
to cope with the pain.
I could not feed myself because I could not
use my fingers and hands. I couldn’t walk because of the pain in
my knees and ankles. I was dependent on other people for
basic life activities and this was a hard thing for me to accept
as I am a very independent person. I also had terrible rashes and
I lost my hair three times since I was diagnosed. I had to wear
a full wig of real hair or use hair extensions to hide
the bald spots that were the size of cookies. I also just covered
the rashes with make-up, as much as I could cover it.”
-Congresswoman Emmeline Aglipay-Villar

With the desire to prevent further misdiagnosis and provide a support system, Em launched Hope for Lupus last December 2016 along with Dr. Paulo Lorenzo, Dr. Ging Racaza, Sid Salazar, and Nadine Bernardino. “It is a non-profit organization that aims to promote the early detection and proper treatment of lupus by increasing awareness about this mysterious condition” Em comments.

Em has been living with lupus for 10 years now. She still experiences flare-ups from time to time, but she faces life with a positive attitude. She tries to stay away from stress, something that is very hard for a congresswoman, a wife, and a mother.

Em lives her life to the fullest. Despite having lupus, she knows what she wants and she goes after it. Her strength is amazing. Em is amazing.

Congresswoman Emmeline Aglipay-Villar, Lupus Warrior.