With the aim of raising awareness on the disease and supporting patients and their families, Democratic Independent Workers Association (DIWA) Representative Emmeline Aglipay-Villar will be launching the Hope For Lupus Foundation this December 4 at the University of the Philippines – Philippine General Hospital (PGH).
Lupus is an autoimmune disease wherein the immune system attacks healthy cells and tissues. Advocating for the importance of the early detection and treatment of the disease, DIWA Rep. Aglipay tells that this is a cause close to her heart because she was diagnosed with Lupus in 2007. “My personal experience is a testament to how early detection could have been prevented major organ damage of kidneys and blood vessels,” said. DIWA Rep. Aglipay-Villar. She emphasized that the awareness of Lupus and its symptoms will allow patients to seek proper treatment at earlier stages, avert major damages, and save more lives.
DIWA Rep. Aglipay-Villar also explained that there have been a lot of misconceptions and myths about Lupus. She mentioned that because of the lack of information, many Lupus patients die from the disease without proper diagnosis and proper treatment. The Hope for Lupus Foundation seeks to raise awareness about the disease by providing national awareness through education, community outreach programs, and funding for Lupus research in the Philippines.
“The lack of awareness on Lupus has already cost so many lives. With Hope For Lupus, no more lives would be lost due to a lack of information and awareness about the disease,” said DIWA Rep. Aglipay-Villar.
The foundation’s launch will feature an exhibit entitled “Lupus Warriors” and a musical play entitled “Mabining Mandirigma” by Nicanor Tiongson in partnership with the University of the Philippines – PGH’s Rheumatology Department. “Mabining Mandirigma” is a steam-punk dance musical depicting the life of the revolutionary Apolinario Mabini. The play will be held at 3:00 PM, Sunday, at the Cultural Center of the Philippines. All proceeds will be given to the Bridging Lupus Fund for the benefit of indigent lupus patients in PGH.
DIWA Rep. Aglipay-Villar hopes that with the foundation, they would be able to establish a Lupus-free Philippines.